
Lotgenotencontact is onmisbaar
De Brugada Community informeert al meer dan 5 jaar patiënten en naasten over het Brugada
Informatie, nieuws en lotgenotencontact voor mensen met het Brugada-syndroom en hun naasten
Brugada community wordt geleid door vrijwilligers en gesteund door medisch adviseurs. Wij zijn (nog) geen geregistreerde organisatie.
De Brugada Community informeert al meer dan 5 jaar patiënten en naasten over het Brugada
Brugada Community is benaderd door de afdeling klinisch Genetica van het UMC Amsterdam en zij
Update 07-06-2023 Helaas hebben we te weinig reacties ontvangen om een goede beoordeling te geven.
Samenvatting van een nieuw onderzoek. Onderstaande samenvatting is door de Brugada Community geschreven. Het originele
Wat is Brugada, een icd, aed en veelgestelde vragen
Het laatste nieuws rondom het Brugada-syndroom
Wetenschappelijk onderzoek naar het Brugada syndroom
Lees de verhalen van lotgenoten
De community voor Brugada patiënten en hun naasten
Kom in contact met lotgenoten
Over de mensen achter de community
Wil je deze community steunen dan kan dat hier!
Voor alle overige vragen, ideeën en tips
Met deze site wil ik mensen met het Brugada-Syndroom, familieleden en andere betrokkenen de mogelijkheid bieden om ervaringen te delen en vragen te stellen aan lotgenoten. Dit kan via de website maar ook onze actieve Facebookgroep
Zelf ben ik van het ene op het andere moment Brugada patiënt geworden. Hierover straks meer. In mijn zoektocht naar lotgenoten met het Brugada-Syndroom, viel het mij op dat uitwisseling met een Brugada lotgenoot moeilijk te vinden was.
Benieuwd naar mijn hele verhaal? Lees dan op deze pagina verder.
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