Terugblik symposium en de presentaties
Update 30-05-2024 Presentaties toegevoegd. 25 mei 2024 was het symposium over het Brugadasyndroom. Het was
“Samen sterk, samen vooruit”
Informatie, nieuws en lotgenotencontact voor mensen met het Brugada-syndroom en hun naasten
Brugada community wordt geleid door vrijwilligers en gesteund door medisch adviseurs. Wij zijn (nog) geen geregistreerde organisatie.
Update 30-05-2024 Presentaties toegevoegd. 25 mei 2024 was het symposium over het Brugadasyndroom. Het was
De Brugada community is nog geen officiële organisatie, maar wij willen deze stap wel gaan
Update: 23-05-2024 Programma gewijzigd. Symposium Brugada syndroom Symposium Brugada syndroom 25 Mei Amsterdam UMC (locatie
In mei 2023 zijn we door de Klinisch Genetica van het Amsterdam UMC benaderd om
Wat is Brugada, een icd, aed en veelgestelde vragen
Het laatste nieuws rondom het Brugada-syndroom
Wetenschappelijk onderzoek naar het Brugada syndroom
Lees de verhalen van lotgenoten
De community voor Brugada patiënten en hun naasten
Kom in contact met lotgenoten
Over de mensen achter de community
Wil je deze community steunen dan kan dat hier!
Voor alle overige vragen, ideeën en tips
Met deze site wil ik mensen met het Brugada-Syndroom, familieleden en andere betrokkenen de mogelijkheid bieden om ervaringen te delen en vragen te stellen aan lotgenoten. Dit kan via de website maar ook onze actieve Facebookgroep
Zelf ben ik van het ene op het andere moment Brugada patiënt geworden. Hierover straks meer. In mijn zoektocht naar lotgenoten met het Brugada-Syndroom, viel het mij op dat uitwisseling met een Brugada lotgenoot moeilijk te vinden was.
Benieuwd naar mijn hele verhaal? Lees dan op deze pagina verder.
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